A rare disease patient organization needed a robust, Europe-wide data platform to manage large volumes of longitudinal clinical data across varied sources. IQVIA’s Clinical Insight platform provided modular, flexible tools for direct or uploaded data entry, error correction, harmonized collection, and regulatory compliance. The solution migrated all historical data without loss, expanded reach across many countries, and collected validated data from tens of thousands of patients. It enabled publication of research, revealed trends, benchmarked health performance, and advanced rare disease research, strengthening registry engagement and data quality.

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