A rare disease organization needed a global platform to capture both clinical and patient-reported data for better understanding of disease progression and patient experiences. IQVIA’s Clinical Insight platform provided an integrated solution, combining clinic-reported and caregiver-reported data with user-friendly features like step-through forms, dashboards, curation tools, and audit logs. The system improved patient engagement, enabling easier data entry while giving clinicians the ability to capture rich, multi-event clinical data. By linking patient-reported outcomes with clinical records, the platform delivered a more complete picture for research and care.

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