Tapping into essential rare disease trial data The information professional at a global biotechnology company focused on rare disease was challenged by the continual flow of requests for clinical trials information from investigators working across the company. She needed to deliver accurate data efficiently so that teams could make quick and informed decisions. The information manager had long relied on manual searches through public registry sources, such as ct.gov. Gathering the information was time consuming, however, and she was increasingly concerned that the data she was able to glean from these sources was neither wholly accurate nor complete. A source of rich, trusted clinical trials data was needed – one that had a depth of coverage in rare diseases. She turn

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